This project (U1TMC31757) is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $500,000, with no financing by nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government; HRSA Project Officer Sarah Beth McLellan.

Data Sources & Methods

Where the data comes from: full sources and methods

Child Population

Number of children
Children as a percentage of the total population
The Kaiser Family Foundation, Population Distribution by Age (2019). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2019. Retrieved on January 15, 2021 from  https://www.kff.org/other/state-indicator/distribution-by-age/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D

Race/Ethnicity

Percentage of children, by race/ethnicity
Population Distribution of children by race/ethnicity, 2019. Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2019. Retrieved January 15, 2021 from https://www.kff.org/other/state-indicator/children-by-raceethnicity/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D

Urban/Rural

Percentage of population living in rural areas
Calculated by Catalyst Center staff by dividing the number of rural households, by all households. Data Source: The US Census Bureau, 2010 Census. Retrieved on July 14, 2020 from https://data.census.gov/cedsci/table?q=H2&g=0100000US.04000,.04000.001&tid=DECENNIALSF12010.H2&vintage=2010&hidePreview=true

Special Health Care Needs

Percentage of children 0-17 who have special health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 15, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7687
Percentage of children with reported special health care needs, by age group
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 15, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7965&g=807
Percentage of children with reported special health care needs, by sex
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 15, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7967&g=807
Percentage of children with reported special health care needs, by race/ethnicity
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 17, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7968&g=807
Percentage of children with reported special health care needs, by primary household language
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 17, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7971&g=807
Percentage of children with reported special health care needs, by household income
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 17, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7974&g=807
Percentage of children with reported special health care needs, by number of functional difficulties
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 17, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7676&g=807
Percentage of children with reported special health care needs, by number of qualifying criteria on the CSHCN screener
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 26, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7694
Percentage of children with special health care needs, by type of CSHCN screener qualifying need
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 26, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7695

Low Birth Weight

Percentage of live births that are low birth weight (all races)
National Vital Statistics Reports, Vol. 68, No. 13, November 27, 2019. Table I–21. Low birthweight births, by race and Hispanic origin of mother: United States, each state and territory, 2018. Retrieved July 16, 2020 from https://www.cdc.gov/nchs/data/nvsr/nvsr68/nvsr68_13_tables-508.pdf
Percentage of live births that are low birth weight by race/ethnicity
National Vital Statistics Reports, Vol. 68, No. 13, November 27, 2019. Table I–21. Low birthweight births, by race and Hispanic origin of mother: United States, each state and territory, 2018. Retrieved July 16, 2020 from https://www.cdc.gov/nchs/data/nvsr/nvsr68/nvsr68_13_tables-508.pdf

Special Education

Percentage of public school students enrolled in Special Education
The National Center for Education Statistics, Digest of Education Statistics (2018-2019). Table 204.70. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and state or jurisdiction: Selected years, 1990-91 to 2018-19. Retrieved February 19, 2021 from https://nces.ed.gov/programs/digest/d19/tables/dt19_204.70.asp

Income

Median Annual Household Income
The Kaiser Family Foundation, Median Annual Household Income 2019. Data Source: U.S. Census Bureau, 2019 Current Population Survey, Annual Social and Economic Supplements Data Table. Retrieved January 22, 2021 from http://kff.org/other/state-indicator/median-annual-income/.
Percentage of children in families with income below 200% of the federal poverty level
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 22, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7975
Percentage of CSHCN in families with income below 200% of the federal poverty level
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 22, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7975&g=807
Percentage of children living in a household receiving food or cash assistance at any time during the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 26, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7948
Percentage of CSHCN living in a household receiving food or cash assistance at any time during the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 26, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7948&g=807

Education

Highest level of education in families raising non-CSHCN
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 6, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7976&g=807
Highest level of education in families raising CSHCN
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 22, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7976&g=807

Employment

Unemployment rate
The Kaiser Family Foundation, Unemployment Rate (Seasonally Adjusted), November 2020. Data Source: Bureau of Labor Statistics (BLS), Regional and State Employment and Unemployment (Monthly), Table 3, Civilian labor force and unemployment by state and selected area, seasonally adjusted, November 2020. Retrieved on January 22, 2021 from https://www.kff.org/other/state-indicator/unemployment-rate/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D
Percentage of families raising non-CSHCN who reported a family member avoided changing jobs because of concerns about maintaining health insurance for their child in the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 22, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7940&g=807
Percentage of families raising CSHCN who reported a family member avoided changing jobs because of concerns about maintaining health insurance for their child in the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 22, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7940&g=807

Financial Impact of Caregiving

Percentage of families raising CSHCN who report they have stopped working or reduced work hours as a result of their child’s health condition(s), in the lat 12 months
National Survey of Children with Special Health Care Needs. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 23, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7939&g=807
Percentage of families who report they have stopped working or reduced work hours as a result of their child’s health condition(s) in the past 12 months, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 23, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7939&g=808
Percentage of families raising CSHCN who paid out-of-pocket medical expenses for their child, by amount
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 23, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7894&g=807
Percentage of families raising CSHCN who report problems paying for the child's health care bills
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 23, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7805&g=807&a=13388
Percentage of families who report problems paying for their child's health care bills, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 23, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7805&g=808&a=13388

Employer Size

Distribution of employers, by number of employees
Calculated by Catalyst Center staff by dividing the number of firms in each size category by the total number of firms. U.S. Census Bureau, Statistics of U.S. Businesses (SUSB). Data Source: Number of Firms, Number of Establishments, Employment, and Annual Payroll by Enterprise Employment Size for the United States and States, Totals: 2017. Data Released March, 2020 Retrieved on July 13, 2020 from https://www.census.gov/data/tables/2017/econ/susb/2017-susb-annual.html.

Employer-Sponsored Health Insurance

Percentage of private sector employers offering health insurance
The Kaiser Family Foundation, Percent of Private Sector Establishments that Offer Health Insurance to Employees, 2019. Data Sources: Agency for Healthcare Research and Quality, Center for Financing, Access and Cost Trends. Medical Expenditure Panel Survey-Insurance Component, 2012-2019. Medical Expenditure Panel Survey Private Sector Insurance Component, Table II.A.2. Retrieved on January 23. 2021 from https://www.kff.org/other/state-indicator/percent-of-firms-offering-coverage/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D
Percentage of private sector employers offering health insurance, by number of employees
The Kaiser Family Foundation, Percent of Private Sector Establishments That Offer Health Insurance to Employees, by Firm Size, 2019. Data Source: Agency for Healthcare Research and Quality, Center for Financing, Access and Cost Trends. Medical Expenditure Panel Survey-Insurance Component, 2012-2019. Medical Expenditure Panel Survey Private Sector Insurance Component, Table II.A.2 Retrieved on January 23, 2021 from https://www.kff.org/other/state-indicator/firms-offering-coverage-by-size/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D

Medicaid Eligibility

Maximum allowed income for Medicaid enrollment, as a percentage of the federal poverty level, compared to the federal minimum requirement
Data Source: Medicaid and CHIP Eligibility, Enrollment, Renewal, and Cost Sharing Policies as of January 1, 2021: Findings from a 50-State Survey, Kaiser Family Foundation, March 2021. At https://www.kff.org/medicaid/report/medicaid-and-chip-eligibility-and-enrollment-policies-as-of-january-2021-findings-from-a-50-state-survey/ . Based on a national survey conducted by the Kaiser Program on Medicaid and the Uninsured with the Georgetown University Center for Children and Families, 2021. Retrieved on April 5, 2021 from https://www.kff.org/health-reform/state-indicator/medicaid-and-chip-income-eligibility-limits-for-children-as-a-percent-of-the-federal-poverty-level/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D.

Federal Match for Medicaid

Federal Medical Assistance Percentage (FMAP)
The Kaiser Family Foundation, Federal Medical Assistance Percentage (FMAP) for Medicaid and Multiplier. Data Source: FY 2022: Federal Register, November 30, 2020 (Vol 85, No. 230, pp 76586-76589., at https://www.govinfo.gov/content/pkg/FR-2019-12-03/pdf/2019-26207.pdf. Retrieved April 5, 2021 from https://www.kff.org/medicaid/state-indicator/federal-matching-rate-and-multiplier/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D .

Health Care

Number of pediatricians per 1,000 children
Calculated by Catalyst Center staff using the number of pediatricians in each state divided by the total number of children, per 1,000. Source for the number of pediatricians per state: American Board of Medical Specialties, 2019-2020 ABMS Certification Report Table 3C: ABMS Board Certified Physicians by Member Board and State. Retrieved on February 5, 2021 from https://www.abms.org/wp-content/uploads/2020/11/ABMS-Board-Certification-Report-2019-2020.pdf. Source for the number of children per state: Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey 2008-2019. Retrieved on February 5, 2021 from https://www.kff.org/other/state-indicator/distribution-by-age/.
Number of family practitioners
American Board of Medical Specialties, 2019-2020 ABMS Certification Report. Table 3C: ABMS Board Certified Physicians by Member Board and State. Retrieved on January 23, 2021 from https://www.abms.org/wp-content/uploads/2020/11/ABMS-Board-Certification-Report-2019-2020.pdf
Number of child and adolescent psychiatrists per 1,000 children
Calculated by Catalyst Center staff using the number of child and adolescent psychiatrists in each state divided by the total number of children per 1,000. Source for the number of psychiatrists per state: American Board of Medical Specialties, 2019-2020 ABMS Certification Report Table 3C: ABMS Board Certified Physicians by Member Board and State. Retrieved on February 5, 2021 from https://www.abms.org/wp-content/uploads/2020/11/ABMS-Board-Certification-Report-2019-2020.pdf. Source for the number of children per state: Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey 2008-2019. Retrieved on February 5, 2021 from https://www.kff.org/other/state-indicator/distribution-by-age/.

Early Intervention Eligibility

Eligibility for Early Intervention services includes infants and toddlers “at risk” of developmental delay
States’ and territories’ definitions of/criteria for IDEA Part C Eligibility, updated March 4, 2015. Retrieved June 21, 2017 from https://ectacenter.org/~pdfs/topics/earlyid/partc_elig_table.pdf

Mental Health

Percentage of non-CSHCN ages 3-17 that received any treatment or counseling from a mental health professional in the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 23, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7734&g=807
Percentage of CSHCN ages 3-17 that received any treatment or counseling from a mental health professional in the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 23, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7734&g=807
Percentage of children with emotional, behavioral or developmental problems for which treatment or counseling is needed who had adequate and continuous private and/or public insurance to pay for the services they need, in the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 24, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7892&g=811.
Percentage of non-CSHCN, ages 3-17, whose health insurance offers benefits or covers services that meet mental or behavioral health needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 24, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7893&g=807
Percentage of CSHCN, ages 3-17, whose health insurance offers benefits or covers services that meet mental or behavioral health needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 24, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7893&g=807

Oral Health

Percentage of children receiving preventive dental care in the past year
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 28, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7726
Percentage of CSHCN receiving preventive dental care in the past year
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 28, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7726&g=807
Percentage of children with teeth in excellent or very good condition
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 28, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7610
Percentage of CSHCN with teeth in excellent or very good condition
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 28, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7610&g=807

Vision Testing

Percentage of children who had their vision tested in the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 27, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7737
Percentage of CSHCN who had their vision tested in the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 27, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7737&g=807
Percentage of children who had their vision tested at the following locations
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved March 21, 2021 from

Received vision screening at eye doctor or specialist office: https://www.childhealthdata.org/browse/survey/results?q=7743&r=1

Received vision screening at pediatrician or general doctor’s office: https://www.childhealthdata.org/browse/survey/results?q=7744&r=1

Received vision screening at school: https://www.childhealthdata.org/browse/survey/results?q=7746&r=1
Percentage of CSHCN who had their vision tested at the following locations
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved March 21, 2021 from

Received vision screening at eye doctor or specialist office: https://www.childhealthdata.org/browse/survey/results?q=7743&r=1&g=807

Received vision screening at pediatrician or general doctor’s office: https://www.childhealthdata.org/browse/survey/results?q=7744&r=1&g=807

Received vision screening at school: https://www.childhealthdata.org/browse/survey/results?q=7746&r=1&g=807

Foster Care

Number of children in foster care
U.S. Department of Health and Human Services, Administration for Children and Families, Children's Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (June 2020). Numbers of Children In Foster Care on September 30th, by State FY 2010–FY 2019. Retrieved on January 28, 2021 from https://www.acf.hhs.gov/cb/resource/trends-in-foster-care-and-adoption
Percentage of children in foster care
Calculated by Catalyst Center staff using the number of children in foster care in each state divided by the total number of children in each state. Source for the number of children in foster care per state: U.S. Department of Health and Human Services, Administration for Children and Families, Children's Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (June 2020). Numbers of Children In Foster Care on September 30th, by State FY 2010–FY 2019. Retrieved on February 5, 2021 from https://www.acf.hhs.gov/cb/resource/trends-in-foster-care-and-adoption. Source for the number of children per state: Population Distribution by Age, states (2019). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey 2008-2019. Retrieved on February 5, 2021 from https://www.kff.org/other/state-indicator/distribution-by-age/.

Uninsured

Percentage of children without health insurance at some point in the past year
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 28, 2021 https://www.childhealthdata.org/browse/survey/allstates?q=7828
Percentage of CSHCN without health insurance at some point in the past year
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 28, 2021 https://www.childhealthdata.org/browse/survey/allstates?q=7828&g=807&a=12922
Percentage of children without health insurance at some point in the past year, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7828&g=808&a=12922

Underinsured

Percentage of children with inadequate health care coverage
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7888
Percentage of CSHCN with inadequate health care coverage
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7888&g=807&a=13708
Percentage of children with inadequate health care coverage, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7888&a=13708&g=808

Private Insurance Coverage

Percentage of children with private health insurance coverage only
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved Janary 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7829
Percentage of CSHCN with private health insurance coverage only
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7829&g=807&a=12926
Percentage of children with private health insurance coverage only, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7829&a=12926&g=808

Public Coverage: Medicaid, CHIP and SSI

Number of children ever enrolled in Medicaid annually
Medicaid, Federal Fiscal Year (FFY) 2019 Statistical Enrollment Data System (SEDS) Reporting, FY2019. FFY 2019 Unduplicated Number of Children Ever-Enrolled in Medicaid and CHIP. Retrieved March 7, 2021 from https://www.medicaid.gov/chip/downloads/fy-2019-childrens-enrollment-report.pdf
Percentage of children enrolled in Medicaid
Calculated by Catalyst Center staff using the number of children enrolled in Medicaid in each state divided by the total number of children in each state. Source for the number of children enrolled in Medicaid per state: Medicaid Federal Fiscal Year (FFY) 2019 Statistical Enrollment Data System (SEDS) Reporting, FY2019. FFY 2019 Unduplicated Number of Children Ever-Enrolled in Medicaid and CHIP. Retrieved February 5, 2021 from https://www.medicaid.gov/chip/downloads/fy-2019-childrens-enrollment-report.pdf. Source for the number of children per state: The Kaiser Family Foundation, Population Distribution by Age (2019). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2019. Retrieved on February 5, 2021 from  http://kff.org/other/state-indicator/distribution-by-age/
Percentage of children enrolled in Medicaid or CHIP only
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7829
Percentage of CSHCN enrolled in Medicaid or CHIP only
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7829&g=807
Percentage of children enrolled in Medicaid or CHIP only, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7829&g=808
Medicaid to Foster Youth from other states
The Henry J. Kaiser Family Foundation, Medicaid and CHIP Eligibility, Enrollment, Renewal, and Cost Sharing Policies as of January 2020: Findings from a 50-State Survey. State Adoption of Optional Medicaid and CHIP Coverage for Children, January 2020. Provides Medicaid Coverage to Former Foster Youth up to Age 26 from Other States. Table 3. Retrieved April 6, 2021 from https://files.kff.org/attachment/Report-Medicaid-and-CHIP-Eligibility,-Enrollment-and-Cost-Sharing-Policies-as-of-January-2020.pdf
Maximum allowed income for CHIP eligibility as a percentage of the FPL
The Kaiser Family Foundation, Medicaid and CHIP Income Eligibility Limits for Children as a Percent of Federal Poverty Level (FPL) as of January 1, 2021. Data source: Medicaid and CHIP Eligibility, Enrollment, Renewal, and Cost Sharing Policies as of January 2021: Findings from a 50-State Survey, Kaiser Family Foundation, March 2021. Based on a national survey conducted by the Kaiser Commission on Medicaid and the Uninsured with the Georgetown University Center for Children and Families, 2021. Retrieved on April 5, 2021 from http://kff.org/health-reform/state-indicator/medicaid-and-chip-income-eligibility-limits-for-children-as-a-percent-of-the-federal-poverty-level/
Number of children ever Enrolled in CHIP Annually
Medicaid Federal Fiscal Year (FFY) 2019 Statistical Enrollment Data System (SEDS) Reporting. Data source: Medicaid.gov, FFY 2019 Number of Children Ever Enrolled in Medicaid and CHIP. FFY 2019 Unduplicated Number of Children Ever-Enrolled in Medicaid and CHIP. Retrieved March 13, 2021 from https://www.medicaid.gov/chip/downloads/fy-2019-childrens-enrollment-report.pdf.
Percentage of children enrolled in CHIP
Calculated by Catalyst Center staff using the number of children enrolled in CHIP in each state divided by the total number of children in each state. Source for the number of children enrolled in CHIP per state: The Kaiser Family Foundation, Total Number of Children Ever Enrolled in CHIP (the Children’s Health Insurance Program) Annually, Fiscal Year 2019. Data source: Medicaid.gov, FFY 2019 Number of Children Ever Enrolled in Medicaid and CHIP. Retrieved February 5, 2021 from  http://kff.org/other/state-indicator/annual-chip-enrollment/. Source for the number of children per state: Source for the number of children per state: The Kaiser Family Foundation, Population Distribution by Age (2019). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2019. Retrieved on February 5, 2021 from  http://kff.org/other/state-indicator/distribution-by-age/
Distribution of Supplemental Security Income (SSI) Beneficiaries by Age
The Kaiser Family Foundation, Distribution of Supplemental Security Income (SSI) Beneficiaries by Age, 2019. Retrieved January 29, 2021 from https://www.kff.org/medicaid/state-indicator/distribution-of-total-ssi-by-age.
TEFRA Medicaid state plan option/Katie Beckett waiver for children
O’Malley Watts, M., Cornachione, E., and Musumeci, M. Medicaid Financial Eligibility for Seniors and People with Disabilities in 2018. (July 19, 2019). The Kaiser Commission on Medicaid and the Uninsured. Available at https://www.kff.org/report-section/medicaid-financial-eligibility-for-seniors-and-people-with-disabilities-findings-from-a-50-state-survey-appendix-tables/.
Immigrant Children Health Improvement Act (ICHIA) Option
The Henry J. Kaiser Family Foundation State Health Facts. Medicaid/CHIP Coverage of Lawfully-Residing Immigrant Children and Pregnant Women as of January 1, 2020. Retrieved August 3, 2020 from http://kff.org/health-reform/state-indicator/medicaid-chip-coverage-of-lawfully-residing-immigrant-children-and-pregnant-women/
Premium Assistance Programs
U.S. Department of Labor, Employee Benefits Security Administration, Premium Assistance under Medicaid and the Children's Health Insurance Program (CHIP) OMB Control Number 1210-0137 (expires 1/31/2023) (current as of January 31, 2021). Retrieved February 4, 2021 from https://www.dol.gov/sites/dolgov/files/EBSA/laws-and-regulations/laws/chipra/model-notice.pdf.

Dual Public and Private Coverage

Percentage of CSHCN with a combination of public and private health insurance
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7829&g=807&a=12927
Percentage of children with a combination of public and private health insurance, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 29, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7829&a=12927&g=808

Health Care Reform

Marketplace overview
The Kaiser Family Foundation, State Health Insurance Marketplace Types, 2021. Data compiled through review of Marketplace documents and communication between the states and CCIIO by the Kaiser Family Foundation. Retrieved January 29, 2021 from http://kff.org/health-reform/state-indicator/state-health-insurance-marketplace-types/
Approved Section 2703 Health Home State Plan Amendments (SPAs)
Medicare & Medicaid Services (CMS), Health Home Information Resource Center. State-by-State Health Home State Plan Amendment Matrix. Retrieved February 19, 2021 from https://www.medicaid.gov/state-resource-center/medicaid-state-technical-assistance/health-home-information-resource-center/downloads/state-hh-spa-at-a-glance-matrix.pdf

Financing

Total Title V Block Grant Expenditures, FY 2019
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2019). Federal-State Title V Block Grant Partnership Budget FY 2019. Retrieved on January 31, 2021 from https://mchb.tvisdata.hrsa.gov/.
Percentage of Title V Block Grant Budget From State, Federal, and Local Funding Sources
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2019). Federal-State Title V Block Grant Partnership Budget FY 2019. Retrieved on January 31, 2021 from https://mchb.tvisdata.hrsa.gov/ . Percentage of Title V Block Grant Budget From State Funds, Local Funds, Program Income, and Other Funds calculated by the Catalyst Center staff by subtracting the Percentage State Title V Block Grant Funds from Federal Sources from 100%.

National Performance Measures Chosen by State

NPM #11- Medical Home
NPM #12- Transition
NPM #13 - Oral Health
NPM #15 - Adequate Insurance
U.S. Department of Health & Human Services, Maternal and Child Health Bureau. National Performance Measures. Retrieved January 31, 2021 from https://mchb.tvisdata.hrsa.gov/PrioritiesAndMeasures/NationalPerformanceMeasures

Federal MCHB Core Outcomes for CSHCN

Percentage of families raising CSHCN who received family-centered care during the past 12 months
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 5, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7757&g=807
Percentage of families raising CSHCN who received family-centered care during the past 12 months, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 19, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7757&g=808.
Percentage of families raising CSHCN who report their child's doctors or other health care providers are sensitive to the family's values and customs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 31, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7760&g=807.
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 31, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7753&g=807
Percentage of children who receive coordinated, ongoing, comprehensive care within a medical home, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 31 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7753&g=808.
Percentage of CSHCN whose families have continuous and adequate private and/or public insurance to pay for the services they need
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 31, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7711&g=807
Percentage of children, ages 0 through 17, who are continuously and adequately insured, by complexity of health care needs
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 31, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7711&g=808.
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved January 31, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7707
Percentage of youth with special health care needs, whose caregiver knows how to keep or obtain health insurance coverage as the youth transitions into adulthood, CSHCN ages 12-17 only
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 26, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7788&g=807.
Percentage of youth whose caregiver knows how to keep or obtain health insurance coverage as the youth transitions into adulthood, by complexity of health care needs -- ages 12-17 only
National Survey of Children's Health. NSCH 2018-2019. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved February 26, 2021 from https://www.childhealthdata.org/browse/survey/allstates?q=7788&g=808

Approved Medicaid Emergency Authorities

Approved 1135 Waiver Provisions
Approved Section 1915c Waiver Appendix K Provisions
The Kaiser Family Foundation, Medicaid Emergency Authority Tracker: Approved State Action to Address COVID-19 (2021). Approved Section 1915 (c) Waiver Appendix K Strategies to Address COVID-19 as of March 1, 2021. Data source: KFF analysis of Appendix K approvals posted to the Medicaid.gov Emergency Preparedness and Response for HCBS 1915(c) Waivers index and to approved 1115 waiver applications from the Medicaid.gov State Waivers List . Retrieved on March 5, 2021 from  https://www.kff.org/coronavirus-covid-19/issue-brief/medicaid-emergency-authority-tracker-approved-state-actions-to-address-covid-19/#Table5

This project (U1TMC31757) is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $500,000, with no financing by nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government; HRSA Project Officer Sarah Beth McLellan.