Number of children
Children as a percentage of the total population
Percentage of children, by race/ethnicity
Percentage of population living in rural areas
Special Health Care Needs
Percentage of children 0-17 who have special health care needs
Percentage of children with reported special health care needs, by age group
Percentage of children with reported special health care needs, by sex
Percentage of children with reported special health care needs, by race/ethnicity
Percentage of children with reported special health care needs, by primary household language
Percentage of children with reported special health care needs, by household income
Percentage of children with reported special health care needs, by number of functional difficulties
Percentage of children with reported special health care needs, by number of qualifying criteria on the CSHCN screener
Percentage of children with special health care needs, by type of CSHCN screener qualifying need
Percentage of live births that are low birth weight (all races)
Percentage of live births that are low birth weight by race/ethnicity
Percentage of public school students enrolled in Special Education
The National Center for Education Statistics, Digest of Education Statistics (2020-2021). Table 204.70. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and state or jurisdiction: Selected years, 1990-91 to 2020-2021. Retrieved September 12, 2022 from
https://nces.ed.gov/programs/digest/d21/tables/dt21_204.70.asp
Median Annual Household Income
Percentage of children in families with income below 200% of the federal poverty level
Percentage of CSHCN in families with income below 200% of the federal poverty level
Percentage of children living in a household receiving food or cash assistance at any time during the past 12 months
Percentage of CSHCN living in a household receiving food or cash assistance at any time during the past 12 months
Highest level of education in families raising non-CSHCN
Highest level of education in families raising CSHCN
Percentage of families raising non-CSHCN who reported a family member avoided changing jobs because of concerns about maintaining health insurance for their child in the past 12 months
Percentage of families raising CSHCN who reported a family member avoided changing jobs because of concerns about maintaining health insurance for their child in the past 12 months
Percentage of families who report they have quit a job, not taken a job, or greatly changed a job because of problems with child care for their child, age 0-5 years
State policies on paid family and sick leave
Financial Impact of Caregiving
Percentage of families raising CSHCN who report they have stopped working or reduced work hours as a result of their child’s health condition(s), in the lat 12 months
Percentage of families who report they have stopped working or reduced work hours as a result of their child’s health condition(s) in the past 12 months, by complexity of health care needs
Percentage of families raising CSHCN who paid out-of-pocket medical expenses for their child, by amount
Percentage of families raising CSHCN who report problems paying for the child's health care bills
Percentage of families who report problems paying for their child's health care bills, by complexity of health care needs
Distribution of employers, by number of employees
Calculated by Catalyst Center staff by dividing the number of firms in each size category by the total number of firms. U.S. Census Bureau, Statistics of U.S. Businesses (SUSB). Data Source: Number of Firms, Number of Establishments, Employment, and Annual Payroll by Enterprise Employment Size for the United States and States, Totals: 2017. Data Released March, 2020 Retrieved on July 13, 2020 from
https://www.census.gov/data/tables/2017/econ/susb/2017-susb-annual.html.
Employer-Sponsored Health Insurance
Percentage of private sector employers offering health insurance
Percentage of private sector employers offering health insurance, by number of employees
Maximum allowed income for Medicaid enrollment, as a percentage of the federal poverty level, compared to the federal minimum requirement
Federal Match for Medicaid
Federal Medical Assistance Percentage (FMAP)
Number of pediatricians per 1,000 children
Number of family practitioners
Number of child and adolescent psychiatrists per 1,000 children
Early Intervention Eligibility
Eligibility for Early Intervention services includes infants and toddlers “at risk” of developmental delay
Percentage of non-CSHCN ages 3-17 that received any treatment or counseling from a mental health professional in the past 12 months
Percentage of CSHCN ages 3-17 that received any treatment or counseling from a mental health professional in the past 12 months
Percentage of children with emotional, behavioral or developmental problems for which treatment or counseling is needed who had adequate and continuous private and/or public insurance to pay for the services they need, in the past 12 months
Percentage of non-CSHCN, ages 3-17, whose health insurance offers benefits or covers services that meet mental or behavioral health needs
Percentage of CSHCN, ages 3-17, whose health insurance offers benefits or covers services that meet mental or behavioral health needs
Percentage of children, ages 3-17, whose public health insurance offers benefits or covers services that meet mental or behavioral health needs
Percentage of children, ages 3-17, whose private health insurance offers benefits or covers services that meet mental or behavioral health needs, by insurance type.
Percentage of children receiving preventive dental care in the past year
Percentage of CSHCN receiving preventive dental care in the past year
Percentage of children with teeth in excellent or very good condition
Percentage of CSHCN with teeth in excellent or very good condition
Percentage of children who had their vision tested in the past 12 months
Percentage of CSHCN who had their vision tested in the past 12 months
Percentage of children who had their vision tested at the following locations
Percentage of CSHCN who had their vision tested at the following locations
Number of children in foster care
U.S. Department of Health and Human Services, Administration for Children and Families, Children's Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (June 2020). Numbers of Children In Foster Care on September 30th, by State FY 2010–FY 2019. Retrieved on January 28, 2021 from
https://www.acf.hhs.gov/cb/resource/trends-in-foster-care-and-adoption
Percentage of children in foster care
Calculated by Catalyst Center staff using the number of children in foster care in each state divided by the total number of children in each state. Source for the number of children in foster care per state: U.S. Department of Health and Human Services, Administration for Children and Families, Children's Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (November 2022). Numbers of Children In Foster Care on September 30th, by State FY 2010–FY 2021. Retrieved on January 24, 2023 from
https://www.acf.hhs.gov/cb/resource/trends-in-foster-care-and-adoption. Source for the number of children per state: Population Distribution by Age, states (2021). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey 2008-2021. Retrieved on January 24, 2023 from
https://www.kff.org/other/state-indicator/distribution-by-age/.
School-Based Health Services
State has taken action to expand Medicaid coverage in schools following the 2014 Free Care Rule reversal
Percentage of children without health insurance at some point in the past year
Percentage of CSHCN without health insurance at some point in the past year
Percentage of children without health insurance at some point in the past year, by complexity of health care needs
Percentage of children with inadequate health care coverage
Percentage of CSHCN with inadequate health care coverage
Percentage of children with inadequate health care coverage, by complexity of health care needs
Private Insurance Coverage
Percentage of children with private health insurance coverage only
Percentage of CSHCN with private health insurance coverage only
Percentage of children with private health insurance coverage only, by complexity of health care needs
Public Coverage: Medicaid, CHIP and SSI
Number of children ever enrolled in Medicaid annually
Percentage of children enrolled in Medicaid
Calculated by Catalyst Center staff using the number of children enrolled in Medicaid in each state divided by the total number of children in each state. Source for the number of children enrolled in Medicaid per state: Medicaid Federal Fiscal Year (FFY) 2019 Statistical Enrollment Data System (SEDS) Reporting, FY2019. FFY 2019 Unduplicated Number of Children Ever-Enrolled in Medicaid and CHIP. Retrieved February 5, 2021 from
https://www.medicaid.gov/chip/downloads/fy-2019-childrens-enrollment-report.pdf.
Source for the number of children per state: The Kaiser Family Foundation, Population Distribution by Age (2019). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2019. Retrieved on February 5, 2021 from
http://kff.org/other/state-indicator/distribution-by-age/
Percentage of children enrolled in Medicaid or CHIP only
Percentage of CSHCN enrolled in Medicaid or CHIP only
Percentage of children enrolled in Medicaid or CHIP only, by complexity of health care needs
Medicaid to Foster Youth from other states
Maximum allowed income for CHIP eligibility as a percentage of the FPL
Full Source: The Kaiser Family Foundation, Medicaid and CHIP Income Eligibility Limits for Children as a Percent of Federal Poverty Level (FPL) as of January 1, 2022. Data source: Medicaid and CHIP Eligibility, Enrollment, Renewal, and Cost Sharing Policies as of January 2022: Findings from a 50-State Survey, Kaiser Family Foundation, March 2022. Based on a national survey conducted by the Kaiser Commission on Medicaid and the Uninsured with the Georgetown University Center for Children and Families, 2022. Retrieved on April 13, 2022 from
https://www.kff.org/health-reform/state-indicator/medicaid-and-chip-income-eligibility-limits-for-children-as-a-percent-of-the-federal-poverty-level/?currentTimeframe=0&sortModel=%7B%22colId%22:%22Location%22,%22sort%22:%22asc%22%7D
Number of children ever Enrolled in CHIP Annually
Percentage of children enrolled in CHIP
Calculated by Catalyst Center staff using the number of children enrolled in CHIP in each state divided by the total number of children in each state. Source for the number of children enrolled in CHIP per state: The Kaiser Family Foundation, Total Number of Children Ever Enrolled in CHIP (the Children’s Health Insurance Program) Annually, Fiscal Year 2019. Data source: Medicaid.gov, FFY 2019 Number of Children Ever Enrolled in Medicaid and CHIP. Retrieved February 5, 2021 from
http://kff.org/other/state-indicator/annual-chip-enrollment/.
Source for the number of children per state: Source for the number of children per state: The Kaiser Family Foundation, Population Distribution by Age (2019). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2019. Retrieved on February 5, 2021 from
http://kff.org/other/state-indicator/distribution-by-age/
Distribution of Supplemental Security Income (SSI) Beneficiaries by Age
TEFRA Medicaid state plan option/Katie Beckett waiver for children
Immigrant Children Health Improvement Act (ICHIA) Option
Premium Assistance Programs
Dual Public and Private Coverage
Percentage of CSHCN with a combination of public and private health insurance
Percentage of children with a combination of public and private health insurance, by complexity of health care needs
Approved Section 2703 Health Home State Plan Amendments (SPAs)
Total Title V Block Grant Expenditures, FY 2021
FULL SOURCE: U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2021). Federal-State Title V Block Grant Partnership Budget FY 2021. Retrieved on January 26, 2023 from
https://mchb.tvisdata.hrsa.gov/.
Percentage of Title V Block Grant Budget From State, Federal, and Local Funding Sources
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2021). Federal-State Title V Block Grant Partnership Budget FY 2021. Retrieved on January 26, 2023 from
https://mchb.tvisdata.hrsa.gov/ . Percentage of Title V Block Grant Budget From State Funds, Local Funds, Program Income, and Other Funds calculated by the Catalyst Center staff by subtracting the Percentage State Title V Block Grant Funds from Federal Sources from 100%.
National Performance Measures Chosen by State
NPM #11- Medical Home
NPM #12- Transition
NPM #13 - Oral Health
NPM #15 - Adequate Insurance
Federal MCHB Core Outcomes for CSHCN
Percentage of families raising CSHCN who received family-centered care during the past 12 months
Percentage of families raising CSHCN who received family-centered care during the past 12 months, by complexity of health care needs
Percentage of families raising CSHCN who report their child's doctors or other health care providers are sensitive to the family's values and customs
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home
Percentage of children who receive coordinated, ongoing, comprehensive care within a medical home, by complexity of health care needs
Percentage of CSHCN whose families have continuous and adequate private and/or public insurance to pay for the services they need
Percentage of children, ages 0 through 17, who are continuously and adequately insured, by complexity of health care needs
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only
Percentage of youth with special health care needs, whose caregiver knows how to keep or obtain health insurance coverage as the youth transitions into adulthood, CSHCN ages 12-17 only
Percentage of youth whose caregiver knows how to keep or obtain health insurance coverage as the youth transitions into adulthood, by complexity of health care needs -- ages 12-17 only
Approved Medicaid Emergency Authorities
Approved 1135 Waiver Provisions
Approved Section 1915c Waiver Appendix K Provisions
This project (U1TMC31757) is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $500,000, with no financing by nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government; HRSA Project Officer Sarah Beth McLellan.