This project (U1TMC31757) is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $500,000, with no financing by nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government; HRSA Project Officer Sarah Beth McLellan.

Data Sources & Methods

Where the data comes from: full sources and methods

Child Population

Number of children
Children as a percentage of the total population
The Kaiser Family Foundation, Population Distribution by Age (2017). Kaiser Family Foundation estimates based on the Census Bureau's March 2016 Current Population Survey (CPS: Annual Social and Economic Supplement). Retrieved on April 20, 2019 from http://kff.org/other/state-indicator/distribution-by-age/

Race/Ethnicity

Percentage of children, by race/ethnicity
Population of children by race/ethnicity, 2017. Kaiser Family Foundation estimates based on the Census Bureau's March 2016 Current Population Survey (CPS: Annual Social and Economic Supplement). Retrieved April 20, 2019 from http://kff.org/other/state-indicator/children-by-raceethnicity/.

Urban/Rural

Percentage of population living in rural areas
Calculated by Catalyst Center staff by dividing the number of rural households, by all households. Data Source: The US Census Bureau, 2010 Census. Retrieved on July, 30, 2019 from https://factfinder.census.gov/bkmk/table/1.0/en/DEC/10_SF1/H2/0100000US.04000

Special Health Care Needs

Percentage of children, 0 -17 , who have special health care needs
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 21, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5355
Percentage of children with reported special health care needs, by age group
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 6, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=6444&g=664
Percentage of children with reported special health care needs, by sex
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=6446&g=664
Percentage of children with reported special health care needs, by race/ethnicity
National Survey of Children's Health. NS-CSHCN 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=6461&g=664
Percentage of children with reported special health care needs, by primary household language
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=6449&g=664
Percentage of children with reported special health care needs, by household income
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=6452&g=664
Percentage of children with reported special health care needs, by number of functional difficulties
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 24, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5341&g=664

Low Birth Weight

Percentage of live births that are low birth weight (all races)
National Vital Statistics Reports, Vol. 67, No. 8, November 7, 2018. Table I–21. Low birthweight births, by race and Hispanic origin of mother: United States, each state and territory, 2017. Retrieved April 29, 2019 from https://www.cdc.gov/nchs/data/nvsr/nvsr67/nvsr67_08_tables-508.pdf
Percentage of live births that are low birth weight by race/ethnicity
National Vital Statistics Reports, Vol. 67, No. 8, November 7, 2018. Table I–21. Low birthweight births, by race and Hispanic origin of mother: United States, each state and territory, 2017. Retrieved April 29, 2019 from https://www.cdc.gov/nchs/data/nvsr/nvsr67/nvsr67_08_tables-508.pdf

Special Education

Percentage of public school students enrolled in Special Education
The National Center for Education Statistics, Digest of Education Statistics (2016). Table 204.70. Number and percent of children served under Individuals with Disabilities Education Act, Part B, by age group and state or jurisdiction: Selected years, 1990-91 to 2015-16. Retrieved May 29, 2019 from  https://nces.ed.gov/programs/digest/d17/tables/dt17_204.70.asp

Income

Median Annual Household Income
The Kaiser Family Foundation, Median Annual Household Income 2017. Data Source: U.S. Census Bureau, 2017 Current Population Survey, Annual Social and Economic Supplements Data Table. Retrieved May 31, 2019 from http://kff.org/other/state-indicator/median-annual-income/.
Percentage of children in families with income below 200% of the federal poverty level
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 29, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=6453
Percentage of CSHCN in families with income below 200% of the federal poverty level
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 24, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=6453&g=664

Education

Highest level of education in families raising non-CSHCN
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 16, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=6454&g=664&a=9641
Highest level of education in families raising CSHCN
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 16, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=6454&g=664

Employment

Unemployment rate
The Kaiser Family Foundation, Unemployment Rate (Seasonally Adjusted), September 2018. Data Source: Bureau of Labor Statistics (BLS), Regional and State Employment and Unemployment (Monthly), Table 3, Civilian labor force and unemployment by state and selected area, seasonally adjusted, September 2018. Retrieved on June 1, 2019 http://kff.org/other/state-indicator/unemployment-rate/
Percentage of families rasing non-CSHCN, who reported a family member avoided changing jobs because of concerns about maintaining health insurance for their child, in the past 12 months
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 16, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5570&g=664
Percentage of families raising CSHCN, who reported a family member avoided changing jobs because of concerns about maintaining health insurance for their child, in the past 12 months
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 16, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5570&g=664

Financial Impact of Caregiving

Percentage of families raising CSHCN who report they have stopped working or reduced work hours as a result of their child’s health condition(s), in the lat 12 months
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 14, 2019 https://www.childhealthdata.org/browse/survey/allstates?q=5569&g=664
Percentage of families who report they have stopped working or reduced work hours as a result of their child’s health condition(s) in the past 12 months, by complexity of health care needs
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 8, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5569&g=665
Percentage of families raising CSHCN who paid out-of-pocket medical expenses for their child, by amount
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved April 29, 2019 https://www.childhealthdata.org/browse/survey/allstates?q=5407&g=664&a=8522
Percentage of families raising CSHCN who report problems paying for the child's health care bills
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 2, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5408&g=664&a=8525
Percentage of families who report problems paying for their child's health care bills, by complexity of health care needs
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 8, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5408&a=8525&g=665

Employer Size

Distribution of employers, by number of employees
Calculated by Catalyst Center staff by dividing the number of firms in each size category by the total number of firms. U.S. Census Bureau, Statistics of U.S. Businesses (SUSB). Data Source: Number of Firms, Number of Establishments, Employment, and Annual Payroll by Enterprise Employment Size for the United States and States, Totals: 2016. Data Released December, 2018. Retrieved on June 24, 2019 from https://www.census.gov/data/tables/2016/econ/susb/2016-susb-annual.html.

Employer-Sponsored Health Insurance

Percentage of private sector employers offering health insurance
The Kaiser Family Foundation, Percent of Private Sector Establishments That Offer Health Insurance to Employees, 2017. Data Sources: Agency for Healthcare Research and Quality, Center for Financing, Access and Cost Trends. Medical Expenditure Panel Survey-Insurance Component, 2012-2017. Medical Expenditure Panel Survey Private Sector Insurance Component, Table II.A.2. Retrieved on June 5, 2019 from http://kff.org/other/state-indicator/percent-of-firms-offering-coverage/
Percentage of private sector employers offering health insurance, by number of employees
The Kaiser Family Foundation, Percent of Private Sector Establishments That Offer Health Insurance to Employees, by Firm Size, 2017. Data Source: Agency for Healthcare Research and Quality, Center for Financing, Access and Cost Trends. Medical Expenditure Panel Survey-Insurance Component, 2012-2017. Medical Expenditure Panel Survey - Insurance Component, Table II.A.2 Retrieved on April 29, 2019 from http://kff.org/other/state-indicator/firms-offering-coverage-by-size/#

Medicaid Eligibility

Maximum allowed income for Medicaid enrollment, as a percentage of the federal poverty level, compared to the federal minimum requirement
Medicaid and CHIP Eligibility, Enrollment, Renewal, and Cost Sharing Policies as of January 2019: Findings from a 50-State Survey, Kaiser Family Foundation, March 2019. At https://www.kff.org/medicaid/report/medicaid-and-chip-eligibility-enrollment-and-cost-sharing-policies-as-of-january-2019-findings-from-a-50-state-survey/ . Based on a national survey conducted by the Kaiser Program on Medicaid and the Uninsured with the Georgetown University Center for Children and Families, 2019. Retrieved on April 29, 2019 from http://kff.org/health-reform/state-indicator/medicaid-and-chip-income-eligibility-limits-for-children-as-a-percent-of-the-federal-poverty-level/.

Federal Match for Medicaid

Federal Medical Assistance Percentage (FMAP)
The Kaiser Family Foundation, Federal Medical Assistance Percentage (FMAP) for Medicaid and Multiplier. Data Source: FY 2020: Federal Register, November 28, 2018 (Vol 83, No. 229), pp 61159 at https://www.govinfo.gov/content/pkg/FR-2018-11-28/pdf/2018-25944.pdf. Retrieved April 29, 2019 from  http://kff.org/medicaid/state-indicator/federal-matching-rate-and-multiplier/ .

Health Care

Number of children’s hospitals
Children's Hospital Association. Children's Hospital Directory: United States. Retrieved on July, 22, 2019 from https://www.childrenshospitals.org/Directories/Hospital-Directory.
Number of pediatricians per 1,000 children
Calculated by Catalyst Center staff using the number of pediatricians in each state divided by the total number of children per 1,000. Source for the number of pediatricians per state: American Board of Medical Specialties, 2017-2018 ABMS Certification Report Table 3C: ABMS Board Certified Physicians by Member Board and State. Retrieved on June 25, 2019 from https://www.abms.org/media/194885/abms-board-certification-report-2017-2018.pdf. Source for the number of children per state: Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey 2008-2017. Retrieved on June 24, 2019 from https://www.kff.org/other/state-indicator/distribution-by-age/.
Number of family practitioners
American Board of Medical Specialties, 2017-2018 ABMS Certification Report. Table 3C: ABMS Board Certified Physicians by Member Board and State. Retrieved on June 25, 2019 from https://www.abms.org/media/194885/abms-board-certification-report-2017-2018.pdf
Number of child and adolescent psychiatrists per 1,000 children
Calculated by Catalyst Center staff using the number of child and adolescent psychiatrists in each state divided by the total number of children per 1,000. Source for the number of psychiatrists per state: American Board of Medical Specialties, 2017-2018 ABMS Certification Report Table 3C: ABMS Board Certified Physicians by Member Board and State. Retrieved on June 25, 2019 from https://www.abms.org/media/194885/abms-board-certification-report-2017-2018.pdf. Source for the number of children per state: Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey 2008-2017. Retrieved on June 24, 2019 from https://www.kff.org/other/state-indicator/distribution-by-age/.

Early Intervention Eligibility

Eligibility for Early Intervention services includes infants and toddlers “at risk” of developmental delay
States’ and territories’ definitions of/criteria for IDEA Part C Eligibility, updated March 4, 2015. Retrieved June 21, 2017 from http://www.nectac.org/~pdfs/topics/earlyid/partc_elig_table.pdf

Mental Health

Percentage of non-CSHCN, ages 3-17, that received any treatment or counseling from a mental health professional, in the past 12 months
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 16, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5445&g=664
Percentage of CSHCN, ages 3-17, that received any treatment or counseling from a mental health professional, in the past 12 months
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 16, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5445&g=664
Percentage of CSHCN with emotional, behavioral or developmental issues whose families have adequate private and/or public insurance to pay for the services they need
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 6, 2019 from https://www.childhealthdata.org/browse/survey/results?q=5405&r=1&g=666.
Percentage of non-CSHCN, ages 3-17, whose health insurance offers benefits or covers services that meet mental or behavioral health needs
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 16, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5406&g=664
Percentage of CSHCN, ages 3-17, whose health insurance offers benefits or covers services that meet mental or behavioral health needs
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 16, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5406&g=664

Oral Health

Percentage of children receiving preventive dental care in the past year
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 6, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5437
Percentage of CSHCN receiving preventive dental care in the past year
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 9, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5437&g=664
Percentage of children with teeth in excellent or very good condition
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 6, 2019 from https://www.childhealthdata.org/browse/survey/results?q=5273&r=1
Percentage of CSHCN with teeth in excellent or very good condition
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved June 10, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5273&g=664

Foster Care

Number of children in foster care
U.S. Department of Health and Human Services, Administration for Children and Families, Children's Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (August 2018). Numbers of Children In Foster Care on September 30th, by State FY 2008–FY 2017. Retrieved on May 6, 2019 from https://www.acf.hhs.gov/cb/resource/trends-in-foster-care-and-adoption
Percentage of children in foster care
Calculated by Catalyst Center staff using the number of children in foster care in each state divided by the total number of children in each state. Source for the number of children in foster care per state: U.S. Department of Health and Human Services, Administration for Children and Families, Children's Bureau, Adoption and Foster Care Analysis and Reporting System (AFCARS) (August 2018). Numbers of Children In Foster Care on September 30th, by State FY 2013–FY 2017. Retrieved on July 22, 2019 from https://www.acf.hhs.gov/cb/resource/trends-in-foster-care-and-adoption. Source for the number of children per state: Population Distribution by Age, states (2017). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2017. Retrieved on July 22, 2019 from https://www.kff.org/other/state-indicator/distribution-by-age/.

Uninsured

Percentage of children without health insurance at some point in the past year
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 6, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5392
Percentage of CSHCN without health insurance at some point in the past year
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 6, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5392&g=664&a=8483
Percentage of children without health insurance at some point in the past year, by complexity of health care needs
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 8, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5392&g=665&a=8483

Underinsured

Percentage of children with inadequate health care coverage
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 6, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5401
Percentage of CSHCN with inadequate health care coverage
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 6, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5401&g=664&a=8503
Percentage of children with inadequate health care coverage, by complexity of health care needs
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 8, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5401&a=8503&g=665

Private Insurance Coverage

Percentage of children with private health insurance coverage
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5400
Percentage of CSHCN with private health insurance coverage
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5400&g=664&a=8499
Percentage of children with private health insurance coverage only, by complexity of health care needs
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 9, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5400&a=8499&g=665

Public Coverage: Medicaid, CHIP and SSI

Number of children ever enrolled in Medicaid annually
Medicaid, Federal Fiscal Year (FFY) 2018 Statistical Enrollment Data System (SEDS) Reporting, FY2018. FFY 2018 Unduplicated Number of Children Ever-Enrolled in Medicaid and CHIP. Retrieved September 19, 2019 from https://www.medicaid.gov/chip/downloads/fy-2018-childrens-enrollment-report.pdf
Percentage of children enrolled in Medicaid
Calculated by Catalyst Center staff using the number of children enrolled in Medicaid in each state divided by the total number of children in each state. Source for the number of children enrolled in Medicaid per state: Medicaid Federal Fiscal Year (FFY) 2018 Statistical Enrollment Data System (SEDS) Reporting, FY2018. FFY 2018 Unduplicated Number of Children Ever-Enrolled in Medicaid and CHIP. Retrieved September 19, 2019 from https://www.medicaid.gov/chip/downloads/fy-2018-childrens-enrollment-report.pdf . Source for the number of children per state: The Kaiser Family Foundation, Population Distribution by Age (2017). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2017. Retrieved on September 20, 2019 from http://kff.org/other/state-indicator/distribution-by-age/
Percentage of children enrolled in Medicaid or CHIP only
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5400
Percentage of CSHCN enrolled in Medicaid or CHIP only
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5400&g=664
Percentage of children enrolled in Medicaid or CHIP only, by complexity of health care needs
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 9, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5400&g=665
Medicaid to Foster Youth from other states
The Henry J. Kaiser Family Foundation, Medicaid and CHIP Eligibility, January 2018 Enrollment, Renewal, and Cost Sharing Policies as of January 2018: Findings from a 50-State Survey. State Adoption of Optional Medicaid and CHIP Coverage for Children, January 2018. Provides Medicaid Coverage to Former Foster Youth up to Age 26 from Other States. Table 3. Retrieved July 19, 2019 from http://files.kff.org/attachment/Report-Medicaid-and-CHIP-Eligibility-as-of-Jan-2018-Table-3.pdf
Maximum allowed income for CHIP eligibility as a percentage of the FPL
The Kaiser Family Foundation, Medicaid and CHIP Income Eligibility Limits for Children as a Percent of Federal Poverty Level (FPL) as of January 1, 2019. Data source: Medicaid and CHIP Eligibility, Enrollment, Renewal, and Cost Sharing Policies as of January 2019: Findings from a 50-State Survey, Kaiser Family Foundation, January 2019. Based on a national survey conducted by the Kaiser Commission on Medicaid and the Uninsured with the Georgetown University Center for Children and Families, 2019. Retrieved on May 6, 2019 from  http://kff.org/health-reform/state-indicator/medicaid-and-chip-income-eligibility-limits-for-children-as-a-percent-of-the-federal-poverty-level/.
Number of children ever Enrolled in CHIP Annually
The Kaiser Family Foundation, Total Number of Children Ever Enrolled in CHIP (the Children’s Health Insurance Program) Annually, Fiscal Year 2018. Data source: Medicaid.gov, FFY 2018 Number of Children Ever Enrolled in Medicaid and CHIP. Retrieved September 19, 2019 from  http://kff.org/other/state-indicator/annual-chip-enrollment/.
Percentage of children enrolled in CHIP
Calculated by Catalyst Center staff using the number of children enrolled in CHIP in each state divided by the total number of children in each state. Source for the number of children enrolled in CHIP per state: The Kaiser Family Foundation, Total Number of Children Ever Enrolled in CHIP (the Children’s Health Insurance Program) Annually, Fiscal Year 2018. Data source: Medicaid.gov, FFY 2018 Number of Children Ever Enrolled in Medicaid and CHIP. Retrieved September 23, 2019 from  http://kff.org/other/state-indicator/annual-chip-enrollment/ . Source for the number of children per state: Source for the number of children per state: The Kaiser Family Foundation, Population Distribution by Age (2017). Kaiser Family Foundation estimates based on the Census Bureau's American Community Survey, 2008-2017. Retrieved on September 23, 2019 from  http://kff.org/other/state-indicator/distribution-by-age/
Distribution of Supplemental Security Income (SSI) Beneficiaries by Age
The Kaiser Family Foundation, Distribution of Supplemental Security Income (SSI) Beneficiaries by Age, 2017. Retrieved May 6, 2019 from https://www.kff.org/medicaid/state-indicator/distribution-of-total-ssi-by-age.
TEFRA Medicaid state plan option/Katie Beckett waiver for children
O’Malley Watts, M., Cornachione, E., and Musumeci, M. Medicaid Financial Eligibility for Seniors and People with Disabilities in 2018. (July 19, 2019). The Kaiser Commission on Medicaid and the Uninsured. Available at https://www.kff.org/report-section/medicaid-financial-eligibility-for-seniors-and-people-with-disabilities-findings-from-a-50-state-survey-appendix-tables/.
Immigrant Children Health Improvement Act (ICHIA) Option
The Henry J. Kaiser Family Foundation State Health Facts. Medicaid/CHIP Coverage of Lawfully-Residing Immigrant Children and Pregnant Women as of January 2019. Retrieved May 6, 2019 from http://kff.org/health-reform/state-indicator/medicaid-chip-coverage-of-lawfully-residing-immigrant-children-and-pregnant-women/
Premium Assistance Programs
U.S. Department of Labor, Employee Benefits Security Administration, Premium Assistance under Medicaid and the Children's Health Insurance Program (CHIP) OMB Control Number 1210-0137 (expires 12/31/2019) (current as of July 31, 2019). Retrieved September 17, 2019 from https://www.dol.gov/sites/dolgov/files/EBSA/laws-and-regulations/laws/chipra/model-notice.pdf.

Dual Public and Private Coverage

Percentage of CSHCN with a combination of public and private health insurance
National Survey of Children's Health . NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 19, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5400&g=664&a=8500
Percentage of children with a combination of public and private health insurance, by complexity of health care needs
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 9, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5400&g=665&a=8500

Health Care Reform

Marketplace overview
The Kaiser Family Foundation, State Health Insurance Marketplace Types, 2019. Data compiled through review of Marketplace documents and communication between the states and CCIIO by the Kaiser Family Foundation. Retrieved September 23, 2019 from http://kff.org/health-reform/state-indicator/state-health-insurance-marketplace-types/
Approved Section 2703 Health Home State Plan Amendments (SPAs)
Medicare & Medicaid Services (CMS), Health Home Information Resource Center. State-by-State Health Home State Plan Amendment Matrix. Retrieved September 19, 2019 from https://www.medicaid.gov/state-resource-center/medicaid-state-technical-assistance/health-home-information-resource-center/downloads/state-hh-spa-at-a-glance-matrix.pdf

Financing

Total Title V Block Grant Expenditures, FY 2017
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2017). Federal-State Title V Block Grant Partnership Budget FY 2017. Retrieved July 15, 2019 from https://mchb.tvisdata.hrsa.gov/.
Percentage of Title V Block Grant Budget From State, Federal, and Local Funding Sources
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (2017). Federal-State Title V Block Grant Partnership Budget FY 2017. Retrieved on July 15, 2019 from https://mchb.tvisdata.hrsa.gov/. Percentage of Title V Block Grant Budget From State Funds, Local Funds, Program Income, and Other Funds calculated by the Catalyst Center staff by subtracting the Percentage State Title V Block Grant Funds from Federal Sources from 100%

National Performance Measures Chosen by State

NPM #11- Medical Home
NPM #12- Transition
NPM #13 - Oral Health
NPM #15 - Adequate Insurance
U.S. Department of Health & Human Services, Maternal and Child Health Bureau. National Performance Measures. Retrieved August 16, 2019 from https://mchb.tvisdata.hrsa.gov/PrioritiesAndMeasures/NationalPerformanceMeasures

Federal MCHB Core Outcomes for CSHCN

Percentage of families raising CSHCN who usually or always feel that they are partners in decision making for child's optimal health
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 24, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5478&g=664
Percentage of families who usually or always feel that they are partners in decision making for child's optimal health, by complexity of health care needs
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 12, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5478&g=665&a=8683.
Percentage of CSHCN who receive coordinated, ongoing, comprehensive care within a medical home
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 10, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5457&g=664
Percentage of children who receive coordinated, ongoing, comprehensive care within a medical home, by complexity of health care needs
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 12, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5457&g=665.
Percentage of CSHCN whose families have continuous and adequate private and/or public insurance to pay for the services they need
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved July 26, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5421&g=664
Percentage of children, ages 0 through 17, who are continuously and adequately insured, by complexity of healthcare needs
National Survey of Children's Health. NSCH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 12, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5421&g=665.
Percentage of youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence -- CSHCN ages 12-17 only
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved May 10, 2019 from https://www.childhealthdata.org/browse/survey/allstates?q=5417
Percentage of youth with special health care needs, ages 12 through 17, who received the services necessary to make transitions to adult health care, by complexity of health care needs
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 12, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5417&g=678.
Percentage of families who report their child's doctors or other health care providers are sensitive to the family's values and customs
National Survey of Children's Health. NS-CH 2016/17. Data query from the Child and Adolescent Health Measurement Initiative, Data Resource Center for Child and Adolescent Health website. Retrieved August 8, 2019 from: https://www.childhealthdata.org/browse/survey/allstates?q=5464&g=664.

This project (U1TMC31757) is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $500,000, with no financing by nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS or the U.S. Government; HRSA Project Officer Sarah Beth McLellan.